Sabiha About the group I belong. I don't think it necessary for you to look further since there is no activity at all. I will think about your group. If it has a website that may be enough or the firs

Hello, I have been reading this thread and gathering great information from all of you. Thank you so much to everyone. I am new to this group. My granddaughter has Shwachman Diamond Syndrome which is

Ok, Thanks For The Info :)

Hi Mike, Ula and others, I wonder how far we have progressed here (Australia) with the implementation of the Codex A. I know it's a bit OT but the next website link gives a bit of an idea what happene